Beth Goodier suffers from two rare genetic conditions but an £80,000 surgery could change her life.

Both Kleine-Levin Syndrome (KLS) and Hypermobile Ehlers Danlos Syndrome (hEDS) have had a huge impact on the 25-year-old.

Louise Hamblin is Beth's boyfriend's mum and is determined to do what she can to help and will be swimming 61km of the Thames over the next few months to raise more money towards the 80 grand total.

Currently the #BackBeth campaign has raised over £18,000 towards this goal but with the surgery Beth needs currently not sponsored by the NHS more money needs to be raised.

Beth is a talented artist and musician as well whose life really could be changed for the better with this surgery.

Louise's Challenge

Louise spoke to Nub News to tell us about the challenge she is taking on.

She said: "I never used to like exercise and at school I never went to any P.E lessons.

"But that all changed a year ago when I joined Surrey Outdoor Swimmers. I've been swimming in the Thames ever since.

"Beth needs life saving surgery and I wanted to do my bit. I thought I'd swim 61km for every year I am old."

Louise will be breaking up the challenge into segments but hopes to complete the whole 61 km in two to three months.

She has already completed the first leg between East Molesey and Thames Ditton and is aiming to swim all the way up to Henley upon Thames.

Louise added: "Outdoor swimming is a lovely thing to do at this time of year - the temperature of the Thames is around 17 or 18 degrees."

Beth's condition

Beth has two rare genetic conditions that are massively affecting her life: KLS and hEDS.

Janine Goodier, Beth's mother has described each condition.

She said: "KLS also known as Sleeping Beauty Syndrome, in the popular media, which she had developed at the age of 16 years old.

"Even through this, during her 'well' periods she worked hard to raise awareness and help others living with this life changing illness.

"Little did we know that whilst she slept and was mainly bed bound the genetic illness that we were unaware she was carrying was causing massive deterioration and damage to her body.

"Ehlers -Danlos Syndrome is an inherited connective tissue disorder that, in short, means Beth's collagen is faulty.

"Collagen is the glue that holds our bodies together. It is found throughout the entire body and in every organ and so EDS can have a devastating affect on almost every system in the body.

"It affects each person differently. For Beth, it means severe daily pain, limited mobility, frequent joint subluxations, prolapses,severe digestive problems and now, most seriously, instability of her spine."

All this means that Beth's neck is unstable and in desperate need of surgery as these conditions have meant she has gone from leading a full life to spending most of the day in bed.

How you can help

So this neck surgery could change her life, but given it is not yet sponsored by the NHS Beth needs your help.

Donations have slowed down due to the global pandemic and multiple fundraisers have had to be cancelled so it is now even more important that you help Beth out.

You can donate to Beth's page HERE

And you can follow Louise's Thames challenge HERE